Best Practices for Working Creatively with Personal Data

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dc.contributor.authorOliver, Marilène
dc.contributor.authorHamilton, Alissa
dc.contributor.authorIngram, Katrina
dc.date.accessioned2025-05-01T20:49:11Z
dc.date.available2025-05-01T20:49:11Z
dc.date.issued2022-01-01
dc.descriptionKnow Thyself as a Virtual Reality (KTVR) is an interdisciplinary project that focuses on the ethics and aesthetics of the use of sensitive personal data and virtual reality. This is an exciting, emerging field which holds huge creative potential and striking opportunities for producing new medical knowledge. Hyper- personal forms of data, such as medical scan data and biometrics, are however fraught with issues related to personal privacy and human rights, especially in relation to artificial intelligence. These best practice for working creatively with sensitive personal data start with an overview of the different data protections and then builds on existing visual research ethics guides to suggest a series of reflective questions around data anonymization, provenance, representation, consent, access and licensing, participation & authorship, sustainability, dissemination & audience and artificial intelligence. Discussions in the guidelines centre around existing artworks by contemporary artists who work with sensitive data, along with the research creation works My Data Body and Your Data Body that are being created as part of the KTVR project.
dc.identifier.doihttps://doi.org/10.7939/r3-zpwd-qt15
dc.language.isoen
dc.relationhttps://www.knowthyself.ualberta.ca
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/
dc.subjectethics
dc.subjectaesthetics
dc.subjectvisual research
dc.subjectsensitive data
dc.subjectartists
dc.subjectvirtual reality
dc.subjectanonymization
dc.subjectprovenance
dc.subjectrepresentation
dc.subjectconsent
dc.subjectaccess and licensing
dc.subjectparticipation and authorship
dc.subjectsustainability
dc.subjectdissemination and audience
dc.subjectartificial intelligence (AI)
dc.subjectKnow Thyself as a Virtual Reality (KTVR)
dc.titleBest Practices for Working Creatively with Personal Data
dc.typehttp://purl.org/coar/resource_type/c_93fc
ual.jupiterAccesshttp://terms.library.ualberta.ca/public

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