Harm, Hype and Evidence: ELSI Research and Policy Guidance

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dc.contributor.authorCaulfield, Timothy
dc.contributor.authorChandrasekharan, Subhashini
dc.contributor.authorJoly, Yann
dc.contributor.authorCook-Deegan, Robert
dc.date.accessioned2025-05-01T12:28:14Z
dc.date.available2025-05-01T12:28:14Z
dc.date.issued2013-01-01
dc.descriptionThere has been much investment in research on the ethical, legal and social issues (ELSI) associated with genetic and genomic research. This research should inform the development of the relevant policy. So far, much of the relevant policy - such as in the areas of patents, genetic testing and genetic discrimination - seems to be informed more by speculation of harm and anecdote than by available evidence. Although a quest for evidence cannot always be allowed to delay policy choice, it seems axiomatic to us that policy options are improved by the incorporation of evidence.
dc.identifier.doihttps://doi.org/10.7939/r3-y1xf-1t95
dc.language.isoen
dc.relationhttp://dx.doi.org/10.1186/gm42
dc.relation.isversionofCaulfield, T., Chandrasekharan, S., Joly, Y., and Cook-Deegan, R. (2013). Harm, Hype and Evidence: ELSI Research and Policy Guidance. Genome Medicine, 5(), .
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subjectmolecular genetics (biochemistry and molecular biophysics)
dc.subjectpolicy choice
dc.subjectethical-legal-social issue
dc.subjectpolicy guidance
dc.subjectpolicy option
dc.subjectgovernment and law
dc.subjectgenetic research
dc.titleHarm, Hype and Evidence: ELSI Research and Policy Guidance
dc.typehttp://purl.org/coar/resource_type/c_6501 http://purl.org/coar/version/c_970fb48d4fbd8a85
ual.jupiterAccesshttp://terms.library.ualberta.ca/public

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