Curating Risk, Mediating Access: mapping the legal, policy and organizational context of data sharing in the health sciences.
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The purpose of the Curating Risk, Mediating Access (CRMA) project is to investigate practices, norms, policies, and infrastructure in clinical and health research that relate to sharing research data. The objectives are two-fold: 1)to map the current legal, ethical, and normative practices across the clinical and health research lifecycle that affect access to and the sharing of confidential health data; and 2)to examine the possible application of privacy-enhanced data sharing protocols for clinical and health research, given the results of the mapping exercise.
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http://purl.org/coar/resource_type/c_6670
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Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
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en